Welcome to the National Institute of Child Health and Human Development and the SDHB Family Screening.

Paragangliomas are rare tumors in the adrenal gland (also called pheochromocytoma), in the chest and abdomen outside the adrenal gland in the head and neck (Also called glomustumors). Mutations of the SDHB gene may cause paragangliomas. The risk of developing a paraganglioma in carriers of an SDHB mutation is unknown, however. This questionnaire is part of a screening for paragangliomas.

To get started:

  • Log In the application and fill out questionnaires.
  • Please answer these questions to your best of knowledge. You may leave blank those questions you don't know the answer to. The information you provide will be further verified and edited by your NIH physician.
Please Contact Us if you have any questions or concerns.